The National Plan to End Parkinson’s Act Becomes Law

July 2024

The National Parkinson's Project has officially been signed into law by President Biden on July 2nd, 2024. This is the first-ever federal legislation dedicated to ending Parkinson’s disease (PD).

Here’s why this law is a game-changer:

• Increased Federal Research Funding: A significant boost to advance research for better treatments and a potential cure.
• Improved Early Diagnosis & Effective Treatments: New pathways to enhance early diagnosis and develop more effective treatment options.
• New Standards for Prevention and Care: Establishes guidelines for preventing Parkinson’s and advancing patient care models.
• Addressing Health Disparities: A focus on ensuring equitable access to diagnosis, treatment, and clinical trials for all individuals affected by Parkinson’s.

This law also aims to reduce the financial and health burdens on those living with and caring for people with PD. This could help spark new and improved models for patient care such as those offered at Synapticure, allowing us to better address health disparities in access to care including diagnosis, treatment, and participation in clinical trials for those who are traditionally underrepresented in the PD care landscape.

Thank you to all the amazing advocates, dedicated volunteers, and those who contacted their representatives. We extend our gratitude to President Biden and members of Congress for their pivotal support in making this historical legislation happen. At Synapticure, we are proud to be part of a community that is making strides toward ending Parkinson’s and improving the lives of those affected by this disease and we are excited about what this means for the future of Parkinson’s care and research.

May 2024

On May 23rd, 2024 the US Senate unanimously passed the National Parkinson's Act. The bill is now sent to President Biden’s desk to be signed into law.

December 2023

The U.S. House of Representatives passes the act on December 14, 2023. Next, the bill will go to the U.S. Senate. The bill passed with overwhelming bipartisan support in the U.S. House of Representatives.

March 2023

The Parkinson's Act was reintroduced to the House and Senate on March 29th, 2023, just in time for Parkinson’s Awareness Month! Both chambers will need to review and pass the bill before it can go to the President for approval. This is a bipartisan effort sponsored by Senator Chris Murphy (D-CT)and Representatives Paul Tonko (D-NY) and thus far, the list of additional supporting senators and representatives continues to grow. 

July 2022

In July 2022, the National Plan to End Parkinson’s Act, the first legislation dedicated to ending Parkinson's disease (PD) was introduced to the US House of Representatives. The goal is to unify the federal government and the private sector to significantly increase federal research funding for PD. It will create an advisory council comprised of federal and nonfederal stakeholders to help Health and Human Services make recommendations regarding research and care of those with PD. This will help accelerate work dedicated to earlier diagnosis, treatments, prevention and a cure for not only PD but related disorders such as Lewy Body Dementia, Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD), as well.

We, at Synapticure, are asking you to support the National Plan to End Parkinson’s (H.R.8585/S.4851) by contacting your representatives and telling them how important this is to our community! Here is an EASY way to advocate. Go to this website, sponsored by the Michael J. Fox Foundation, and fill in your information. This will generate letters to go to your Senators and Representatives. You can send them as is or edit each one to add personal details. Together we can push this bill into law.